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Charlie and Alfie Feilden, from Winsley, near Bath are closely bonded – they’re twins
Charlie is getting to all childhood milestones and growing stronger
However, Alfie, four-and-a-half, contrasted to his brother, suffers spinal muscular atrophy
Muscles gradually deteriorate and and he is more and more engulfed by the condition
In Britain, 30,000 children a year are born with inherited genetic disorder
Nearly 6,000 such conditions exist, besides Down’s syndrome

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